It's like being on the open ocean upon the deck of a beautiful white yacht. You turn your face up towards the sun and it's warmth bathes your body and melts away the everyday worries which sometimes consume your mind all to readily. Trivialities are ignored and easily fade into the background. This newborn bundle in your arms is so full of promise. This thing, this one thing is what you've done right. When you hold that hope for the first time nothing else in this whole wide world matters. Everything for that one beautiful moment is still. That choppy ocean you've been travelling - the ups and downs of everyday life - is forgotten. The waves are silent, the birds are quiet, the wind is a gentle breeze on your face and everything is peaceful.
When I feel the sun on my face slowly being overshadowed by a squall that has taken up residence directly over head, I am alarmed but not panicked. I glance back at Scott, his hands are holding my other two children's when suddenly our yacht lurches and throws us off our feet. I clutch wildly to this new life in my arms and I stretch out my hand to grasp my husbands, but I can't quite reach him. He wildly glances at our other babies, "I've got them", he mouths. And I know I have no other choice. I cannot be their mother right now, I have to be Preston's. When the clouds thicken overhead, threatening to spill their contents over me like a shower of doom, I desperately search for the sun, for the light to lead my way out.
It's pitch black when your worst fear takes up residence beside you. There are people all around me, rescuers throwing buoys to me, begging me to grab hold so they can pull me to shore. But I can't find them in the dark. I stumble and fall over obstacles that shouldn't be there and my fear is only overshadowed by my anger. I force myself to take a deep breath. It's shaky, and cold, but I force myself to draw another. There seems to be no hope here, no hope in this darkness that looms overhead. I feel so utterly, and hopelessly alone. In my desperate pleas to understand this new heading my yacht is on I stumble upon a card game I never realized was being played. "I don't gamble", I state and I hear the dealers ragged breath rattle out of him like a poisonous snake hiding in the grass, "life's a gamble" he whispers in my ear.
In our desperate attempt to clutch one another in this unpredictable thing called life, the human condition ensures that when the chips are down and the cards are dealt you play for yourself. The other people at your table are beside you, but they can't play for you...no matter how much you wish they could.
I glance down at my shaking hands, I still have him in my arms, he's still clutching to me baby fresh, and wonderfully oblivious to the cards he holds...jokers smiling cruelly up at him. I force myself to look at my own cards...can I beat the dealer, this man in the black cloak, this man with no face. My yacht crests upon a wave. His movements are slow and deliberate but he lays his cards down, one after another and it seems I could beat him. The clouds break overhead and I can see the sun once more. The cloaked man still holds a card close to his vest and soon I will get to see what it is. But for now I turn my face upwards and let the sun melt away the worries of everyday life, and in one smooth motion Preston turns his face upwards too and we will away the dark together.
Sunday, April 3, 2011
Thursday, March 31, 2011
Dear Fates
I humbly request your attention,
I know it's only been a few short months since the last time we spoke. I begged you to change course, to make Preston healthy. By all accounts you granted my reprieve, but there is one small addendum to my last petition which I need to make clear. Preston is gaining weight, the holes in his heart are growing over, and yet his need for surgery may still be present. It rests on whether or not the left over holes are enough to cause irritation, inflammation, and possible endocarditis in my sweet, little boy. So my addendum is simply this...no surgery.
I cannot have my child opened up. I cannot have a strangers hands on my sons heart. I cannot have his heart stopped and to live eight uncertain hours, and countless days hoping my son will be alright. Don't get me wrong, dear Fates, I will if I have to. If it's your wish...your decision...to put me through weeks of torture then I will count down the hours until my son's surgery date. I will hold my sons hand and kiss him goodbye as they wheel him into surgery. I will wait and beg the minutes to pass quicker. I will walk into his room and take it all in, the tubes attached to his body, the machines beeping, the nurses and doctors monitoring his progress. I will spend sleepless nights watching my son's chest slowly rise and fall. I will cry, and pray, and strain my eyes while staring uncertainly into the future. I will do what I have to do.
May 4, 2011 is my son's next cardiology appointment. Please grant me this one last request...I humbly beseech your cooperation in ensuring that my son will not need surgery. And if my life is too awesome, if it shines too bright and I need a lesson in humility...then let me switch places with my son. It's an easy switch you see, because I have a congenital heart defect too. One little twist from you and roles could be reversed, if you so wish. But no matter what you choose, it is my heart in your hands. I beg you...do not break it.
Sincerely,
Carrie.
I know it's only been a few short months since the last time we spoke. I begged you to change course, to make Preston healthy. By all accounts you granted my reprieve, but there is one small addendum to my last petition which I need to make clear. Preston is gaining weight, the holes in his heart are growing over, and yet his need for surgery may still be present. It rests on whether or not the left over holes are enough to cause irritation, inflammation, and possible endocarditis in my sweet, little boy. So my addendum is simply this...no surgery.
I cannot have my child opened up. I cannot have a strangers hands on my sons heart. I cannot have his heart stopped and to live eight uncertain hours, and countless days hoping my son will be alright. Don't get me wrong, dear Fates, I will if I have to. If it's your wish...your decision...to put me through weeks of torture then I will count down the hours until my son's surgery date. I will hold my sons hand and kiss him goodbye as they wheel him into surgery. I will wait and beg the minutes to pass quicker. I will walk into his room and take it all in, the tubes attached to his body, the machines beeping, the nurses and doctors monitoring his progress. I will spend sleepless nights watching my son's chest slowly rise and fall. I will cry, and pray, and strain my eyes while staring uncertainly into the future. I will do what I have to do.
May 4, 2011 is my son's next cardiology appointment. Please grant me this one last request...I humbly beseech your cooperation in ensuring that my son will not need surgery. And if my life is too awesome, if it shines too bright and I need a lesson in humility...then let me switch places with my son. It's an easy switch you see, because I have a congenital heart defect too. One little twist from you and roles could be reversed, if you so wish. But no matter what you choose, it is my heart in your hands. I beg you...do not break it.
Sincerely,
Carrie.
Friday, March 25, 2011
The wheel turns
My life has been through it's up and downs. I come from an interesting background. A brain injured father with a short fuse. A mother who lost custody due to some unfortunate circumstances. A bitter divorce between my parents, a disturbingly brutal custody battle that I, as a child, got caught in the middle of. I have, in the past, turned inwards...afraid of the world. I was privy to some of the uglier parts of life being spewed by those I love and trusted the most, and it made me self conscious and scared. Don't get me wrong I love my parents dearly, but they were young and made plenty of mistakes...those achingly, normal humans. But I tried to reconcile the tough parts of my life with the idea of fate. The idea that all I had endured was for a reason. So I trudged through and I got on with life, sorta.
I made plenty of mistakes too - this flawed girl - especially with the losers I dated, with the friends I ignored, with the anxiety I let consume me so readily. But my world changed truly, and completely when I met Scott. When I say he is the love of my life it is such an understatement as to be almost laughable. Scott saved me. His calm, sweet nature. His patience and support. He showed me that we are only as flawed as we allow. Only broken if we don't take to mending ourselves. He taught me that life can't be ignored or run from just because you are afraid. Take the good with the bad, and all that.
Let me tell you that it's inevitable...the bad. Your Wheel of Fortune that goes round and round and ticks off your next adventure will eventually land on bankrupt. Fate slaps you down when you least expect it, my friend. But I've discovered that there are warnings, strange eerie warnings that preclude these occurrences. The first major obstacle Scott and I had to endure as a couple was Gabriel's prematurity. A week before my water broke I wrote in Gabriel's baby book.
March 5, 08 (33 weeks old)
There is seven weeks left until your due date. Your daddy and I can't wait to see you. We are so excited and just want you to come home! We know you still have some growing to do and so we are waiting...impatiently...but we just can't wait until we can hold you in our arms!
A warning of things to come, or just a mother's over eagerness to have her baby home? Did I suspect something unconsciously? I brushed it off as just a weird coincidence.
A few happy years later I became pregnant with Preston. After giving birth to Edie I had become an avid mom blogger. I enjoyed keeping a journal for my kids, and I enjoyed reading other women's journeys. One day while blog surfing I came across a heartbreaking story about a woman whose child had essentially died while breastfeeding. They rushed the baby to the hospital only later to pronounce the baby dead and declare it was caused by something called a congenital heart defect. Because I was pregnant and crazy hormonal, by the end of her story I was balling. Scott asked what was wrong and I told him. "I'm so glad all our children are healthy, I would hate to have a child born with a congenital heart defect"...
Fate made sure I ate those words...
So now the wheel turns again, and when and where I step off next I don't know. I just hope it's less intense then this last go around.
I made plenty of mistakes too - this flawed girl - especially with the losers I dated, with the friends I ignored, with the anxiety I let consume me so readily. But my world changed truly, and completely when I met Scott. When I say he is the love of my life it is such an understatement as to be almost laughable. Scott saved me. His calm, sweet nature. His patience and support. He showed me that we are only as flawed as we allow. Only broken if we don't take to mending ourselves. He taught me that life can't be ignored or run from just because you are afraid. Take the good with the bad, and all that.
Let me tell you that it's inevitable...the bad. Your Wheel of Fortune that goes round and round and ticks off your next adventure will eventually land on bankrupt. Fate slaps you down when you least expect it, my friend. But I've discovered that there are warnings, strange eerie warnings that preclude these occurrences. The first major obstacle Scott and I had to endure as a couple was Gabriel's prematurity. A week before my water broke I wrote in Gabriel's baby book.
March 5, 08 (33 weeks old)
There is seven weeks left until your due date. Your daddy and I can't wait to see you. We are so excited and just want you to come home! We know you still have some growing to do and so we are waiting...impatiently...but we just can't wait until we can hold you in our arms!
A warning of things to come, or just a mother's over eagerness to have her baby home? Did I suspect something unconsciously? I brushed it off as just a weird coincidence.
A few happy years later I became pregnant with Preston. After giving birth to Edie I had become an avid mom blogger. I enjoyed keeping a journal for my kids, and I enjoyed reading other women's journeys. One day while blog surfing I came across a heartbreaking story about a woman whose child had essentially died while breastfeeding. They rushed the baby to the hospital only later to pronounce the baby dead and declare it was caused by something called a congenital heart defect. Because I was pregnant and crazy hormonal, by the end of her story I was balling. Scott asked what was wrong and I told him. "I'm so glad all our children are healthy, I would hate to have a child born with a congenital heart defect"...
Fate made sure I ate those words...
So now the wheel turns again, and when and where I step off next I don't know. I just hope it's less intense then this last go around.
Thursday, March 24, 2011
Broken hearts love the best.
Little Puck,
You have found your hands and have developed a love/hate relationship with them! You will put anything into your mouth that your little fingers grasp; and if you can't get it between your teething gums the way you want, you scream baby obscenities at it. Your big brother thinks this is hilarious and often presents you a full head of his hair to tug on, only to pull away and admonish you afterwards.Gabriel enjoys giving you endless attention. From cuddles to peek-a-boo he never leaves you alone. It seems every time he screams in your face (just for the startle reflex) and I begin to discipline him, you break out into a huge grin, or giggle with delight! It makes stopping his behaviour extremely difficult! I have a sneaking suspicion you two will be plotting devious adventures every chance you get.
You are truly loved Puck, even by Edie. She is so rough and tumble I didn't expect her to have a gentle bone in her body. But when it comes to you... her tomboy exterior melts and reforms as a little mama. She, oh so gently, hugs and kisses you and lovingly whispers Puck as she strokes your head. The other day I was busy cleaning and you would fuss occasionally. Every time I turned around to give you reassurance, your sister was there handing you a new toy. Of course this never lasts long! When she feels she has become too sappy she soon remedies it by attacking Gabriel in one fashion or another. Today she very slowly and gently kissed your forehead, then turned around to see your big brother and kicked his knee so hard he collapsed to the ground... She's an amazon Puck...be happy she loves you!
Your father and I adore you as well, of course! Knowing you are our last baby has made every second of your little life celebrated. You are so spoiled! For a heart that was born broken, and still poses us some anxiety and worry, it sure has reached out and touched a lot of people. Especially those people who see you everyday.
I love you Little Puck. Now and forever.
Mom.
You have found your hands and have developed a love/hate relationship with them! You will put anything into your mouth that your little fingers grasp; and if you can't get it between your teething gums the way you want, you scream baby obscenities at it. Your big brother thinks this is hilarious and often presents you a full head of his hair to tug on, only to pull away and admonish you afterwards.Gabriel enjoys giving you endless attention. From cuddles to peek-a-boo he never leaves you alone. It seems every time he screams in your face (just for the startle reflex) and I begin to discipline him, you break out into a huge grin, or giggle with delight! It makes stopping his behaviour extremely difficult! I have a sneaking suspicion you two will be plotting devious adventures every chance you get.
You are truly loved Puck, even by Edie. She is so rough and tumble I didn't expect her to have a gentle bone in her body. But when it comes to you... her tomboy exterior melts and reforms as a little mama. She, oh so gently, hugs and kisses you and lovingly whispers Puck as she strokes your head. The other day I was busy cleaning and you would fuss occasionally. Every time I turned around to give you reassurance, your sister was there handing you a new toy. Of course this never lasts long! When she feels she has become too sappy she soon remedies it by attacking Gabriel in one fashion or another. Today she very slowly and gently kissed your forehead, then turned around to see your big brother and kicked his knee so hard he collapsed to the ground... She's an amazon Puck...be happy she loves you!
Your father and I adore you as well, of course! Knowing you are our last baby has made every second of your little life celebrated. You are so spoiled! For a heart that was born broken, and still poses us some anxiety and worry, it sure has reached out and touched a lot of people. Especially those people who see you everyday.
I love you Little Puck. Now and forever.
Mom.
Monday, March 21, 2011
Home
We moved into our house when my oldest son was 14 months old. It was the middle of April and I was absolutely enamored by the crown moldings, master bedroom with en suite and jacuzzi tub, and beautiful hardwood floors. It is our first house. It is brand new. It's is 100% ours.
Now I look around my house and groan. The beauty has been brutally beaten out of it by the destructive nature that is my kids... The off white color of my walls, which held the slightest of yellow tinge, now looks worn beyond it's years. The chips, holes, scratches,finger hand body imprints of my children smear every wall...even in places seemingly unreachable. And just in case their greasy, muddy, food filled, acts of vandalism isn't enough, they ensure that my walls also meet with stickers, crayons, and pens.
The beauty once held by my walls was highlighted by large, numerous windows; big, beautiful, and mounted over huge stark white, wooden ledges. Gorgeous. That is until my toddlers began to toddle, and their tiny little faces stretched to get a glance outside. As their tip toes propelled them onwards and upwards their mouths did what they did best. Slobbered and chewed on the ledges that were once the pride of my home. Now my window sills are marred by giant bite marks, and missing slivers of wood...
Speaking of wood...I have dark, hardwood floors that just add a certain elegance to my house...at least they did before the toy assaults, dragged furniture, and practically fatal body falls. Everywhere you look you can see divots, scratches, devastating hardwood destruction. Before we move these floors will need a good sanding...or to be replaced all together. Sigh.
But alas, this isn't a museum, and those dirty, marred, walls tell a story...One wall has pen marks made by me, measuring my growing children as they stand (not so patiently) backspressed pinned to the wall, waiting to be marked. And that hole by our front door was caused by Gabriel...who during a 'time out' unscrewed the door stopper and we didn't notice until it was too late. By the way, those crayon marks in the kitchen, those were made by Edie as her artistic talent just couldn't be contained to the paper I had given her. That trail of grime that leads up our stairs, that's where my kids place their food covered hands as we rush them up for their evening bath, giggling and screaming, the whole way there.
The teeth marks on my window ledges, are a measurement of my children's slowly growing confidence and independence. Unsteady on their feet, grasping tightly to the edge of their world; peering out, safe in this sanctuary I have created.
And my floors are where Edie took her first steps, where Gabriel had numerous potty accidents but through trial and error is now trained. These floors are where I lay Puck for tummy time and on occasion they become a wild dance floor for our entire family.
Yes indeed, my house has been destroyed and reborn as a home.
Now I look around my house and groan. The beauty has been brutally beaten out of it by the destructive nature that is my kids... The off white color of my walls, which held the slightest of yellow tinge, now looks worn beyond it's years. The chips, holes, scratches,
The beauty once held by my walls was highlighted by large, numerous windows; big, beautiful, and mounted over huge stark white, wooden ledges. Gorgeous. That is until my toddlers began to toddle, and their tiny little faces stretched to get a glance outside. As their tip toes propelled them onwards and upwards their mouths did what they did best. Slobbered and chewed on the ledges that were once the pride of my home. Now my window sills are marred by giant bite marks, and missing slivers of wood...
Speaking of wood...I have dark, hardwood floors that just add a certain elegance to my house...at least they did before the toy assaults, dragged furniture, and practically fatal body falls. Everywhere you look you can see divots, scratches, devastating hardwood destruction. Before we move these floors will need a good sanding...or to be replaced all together. Sigh.
But alas, this isn't a museum, and those dirty, marred, walls tell a story...One wall has pen marks made by me, measuring my growing children as they stand (not so patiently) backs
The teeth marks on my window ledges, are a measurement of my children's slowly growing confidence and independence. Unsteady on their feet, grasping tightly to the edge of their world; peering out, safe in this sanctuary I have created.
And my floors are where Edie took her first steps, where Gabriel had numerous potty accidents but through trial and error is now trained. These floors are where I lay Puck for tummy time and on occasion they become a wild dance floor for our entire family.
Yes indeed, my house has been destroyed and reborn as a home.
Saturday, March 19, 2011
Toddler conversations...the bane of my existence.
So it's happened. Gabe learned a phrase I now regret ever uttering. He repeats it a million times a day..."Mom's bum hole". Yes. I now wish I hadn't told him that Metamucil, Raisin Bran, etc...was for my bum hole. At the time I was trying to ensure he understood that he couldn't eat what I was eating... and somehow "optimal digestion" for the "prevention and cure of hemorrhoids after birth" didn't seem the best explanation for my two (now three) year old.
Suddenly everything I do, somehow relates to my...you guessed it...bum hole. I drink a glass of water at the table " Water for mom's bum hole?"... I eat a banana, " Oh, for mom's bum hole?". I lay down on the couch "mom's bum hole hurt?" I eat a bowl of Raisin Bran and he screams, "Bum hole cereal". But until a recent trip out in the real world I just found all of this very amusing...I soon learned it wasn't quite as funny as I thought.
Yesterday I went to the bank to replace my old card with a fancy, new chip card and he asks me in front of the teller "a go home mom?". I shake my head and reply "Not yet hunny, we have to wait for my new bank card"..."Oh!" he says while looking at the teller "My mom's bum hole broke"...The teller and I go three shades of red while I cover Gabe's mouth with my hand and mutter..."I'm fine"...
Yes. I'm so glad I explained proper nutrition for a healthy body so appropriately...Now I dread leaving my house.
Anyone else out there have a story about your toddler saying a little too much? Feel free to share and relieve me from my embarrassment.
Suddenly everything I do, somehow relates to my...you guessed it...bum hole. I drink a glass of water at the table " Water for mom's bum hole?"... I eat a banana, " Oh, for mom's bum hole?". I lay down on the couch "mom's bum hole hurt?" I eat a bowl of Raisin Bran and he screams, "Bum hole cereal". But until a recent trip out in the real world I just found all of this very amusing...I soon learned it wasn't quite as funny as I thought.
Yesterday I went to the bank to replace my old card with a fancy, new chip card and he asks me in front of the teller "a go home mom?". I shake my head and reply "Not yet hunny, we have to wait for my new bank card"..."Oh!" he says while looking at the teller "My mom's bum hole broke"...The teller and I go three shades of red while I cover Gabe's mouth with my hand and mutter..."I'm fine"...
Yes. I'm so glad I explained proper nutrition for a healthy body so appropriately...Now I dread leaving my house.
Anyone else out there have a story about your toddler saying a little too much? Feel free to share and relieve me from my embarrassment.
Tuesday, March 15, 2011
Three years past
Dear Gabriel,
Three years ago seems so long and yet I remember it so clearly. Crystal clear. My water had broken too early, and I was scared. The fear I felt was of the unknown. The unknown of how you would do outside my womb when you needed so desperately to remain there. My fear that you would not cry, would not fight, the fear I would never get to know you.
Your birth was by far the hardest I have had. Hard because I wanted so desperately to be somewhere else. Surrounded by people, doctors and nurses, the men and women who were assigned the task of caring for your tiny, fragile life; a life I had naively assumed would be your father and I's task alone, was brought into this world silently. Your 4lb 12 oz frame stubbornly refused to cry. Your father and I waited, listened, strained to hear what we longed for. And after an eternity those few, your guardians, got you to breathe, to scream, and I collapsed on my pillow, praying that this would be the worst thing I would ever have to face. Two weeks was spent in the NICU. Two weeks of unease, and fear, and the unknown. Two weeks where you beat the odds, avoided infection and jaundice. And now. Now three years have passed and I'm amazed by all that you are.
Only three and yet older. A look in your eyes, the set of your mouth, the knit of your eyebrows? Something gives off a look of wisdom rarely encountered in a child your age. You have a sense of self and an understanding of others which is unusual for a toddler. Your empathetic nature is astounding. In an age that screams "mine"- which you do from time to time- you are often found sharing, teaching, and loving those around you.
Three years have come and gone; and although I have now faced a worse set of circumstances (thanks Preston)...your bewitching green eyes, your beautiful smile, and crazy rowdy hair ensures that the hope born in that wish; on that day, has not died- only grown- in these three years past.
My hope for the future lies with you and your siblings. My love for you will always go unmatched.
Happy Birthday my big boy. Laugh hard.
Mom.
Three years ago seems so long and yet I remember it so clearly. Crystal clear. My water had broken too early, and I was scared. The fear I felt was of the unknown. The unknown of how you would do outside my womb when you needed so desperately to remain there. My fear that you would not cry, would not fight, the fear I would never get to know you.
Your birth was by far the hardest I have had. Hard because I wanted so desperately to be somewhere else. Surrounded by people, doctors and nurses, the men and women who were assigned the task of caring for your tiny, fragile life; a life I had naively assumed would be your father and I's task alone, was brought into this world silently. Your 4lb 12 oz frame stubbornly refused to cry. Your father and I waited, listened, strained to hear what we longed for. And after an eternity those few, your guardians, got you to breathe, to scream, and I collapsed on my pillow, praying that this would be the worst thing I would ever have to face. Two weeks was spent in the NICU. Two weeks of unease, and fear, and the unknown. Two weeks where you beat the odds, avoided infection and jaundice. And now. Now three years have passed and I'm amazed by all that you are.
Only three and yet older. A look in your eyes, the set of your mouth, the knit of your eyebrows? Something gives off a look of wisdom rarely encountered in a child your age. You have a sense of self and an understanding of others which is unusual for a toddler. Your empathetic nature is astounding. In an age that screams "mine"- which you do from time to time- you are often found sharing, teaching, and loving those around you.
Three years have come and gone; and although I have now faced a worse set of circumstances (thanks Preston)...your bewitching green eyes, your beautiful smile, and crazy rowdy hair ensures that the hope born in that wish; on that day, has not died- only grown- in these three years past.
My hope for the future lies with you and your siblings. My love for you will always go unmatched.
Happy Birthday my big boy. Laugh hard.
Mom.
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